Tuesday, December 27, 2016

Meet donor recipient baby Camila. 

 She was born full term at 6lbs. 13 oz. but, just after her cord was cut, she was immediately whisked away from her family by the doctors.  After 6 hours and multiple doctor examinations and opinions, Camila was diagnosed with a very rare condition called Total Anomalous Pulmonary Vein Connection, a congenital defect of the pulmonary veins, and needed immediate open heart surgery. Her lungs were filling up with fluid and her kidneys, liver, spleen, and stomach were being damaged.  It was recommended that she go to a hospital in Dallas or Houston but, with flooding in Houston and tornadoes in Dallas, they had no choice but to transport her by helicopter to Dell Children’s Hospital in Austin.  Every second counted and the doctors didn’t expect her to live. 

After she arrived in Austin and doctors repaired her heart, her chest had to be left open for 10 days to ensure that her heart and lungs were functioning properly. Camila’s mother, Silvia, didn’t even get the chance to hold her baby; Camila was so fragile after the surgery that Silvia could only touch her feet.  Camila was given narcotics for the first 15 days after the surgery, was intubated, and also needed a feeding tube. 

Additionally, Camila developed blood clots in her lungs and brain, giving her seizures.  She was in a near comatose state for more than a month and was given blood thinners until just recently.

During this time, Silvia was trying to pump milk every 3-4 hours in order to give her baby what she needed to survive, but Silvia was struggling to produce.  Silvia’s parents stayed with their family to help with her 2 year old but, while visiting, Silvia’s Mom fell and broke her leg.  Silvia’s stress was through the roof after the accident and her small amount of milk reduced even more.  They tried formula, but Camila couldn’t tolerate it.  This is when she started receiving donor milk from Mothers' Milk Bank at Austin.

In order to receive this milk, Camila uses a G Button which allows milk to go directly into her stomach where she received 130mls of donor milk every three hours around the clock. Because of this G Button method, Camila hadn’t been breast feed or bottle feed while receiving treatment so she never learned how to suck or swallow.  She is now working with a speech therapist to learn those much needed skills. 

Against all odds, Camila’s parents are so thrilled that she not only survived, but is now thriving.  She’s is a miracle baby: growing, happy, laughing and with a few medical issues.  On behalf of Silvia, we say thank you to all the moms who donate milk to the Mothers' Milk Bank at Austin.  Camila received the best hospital, doctors, nurses, and equipment but, without human milk, wouldn’t be here today.

Mother’s Milk Bank at Austin has been provided milk charitably through philanthropic gifts from the community valued at over $4,000 to Camila.  Thanks to our financial supporters, as well as donor Moms, MMBA has never said no!  Make a milk or financial contribution and you will be the next lifesaver for another Camila. 

                   www.milkbank.org  512-494-0800

Monday, July 18, 2016

Milk Donor Mom Minute

I'm a teacher and I got lucky enough to give birth to that perfectly timed “late-spring teacher baby” (summer break=extended maternity leave!) I heard from a lot of friends who struggled to keep their milk supply going once the school year started, so I did everything I could to boost mine over the summer—I started pumping and hand expressing weeks before I went back to work.

Well, when the school year started, I found out I'd done a little too good a job. The baby didn't like the bottle much, so he would nurse all night and all weekend (thus further boosting my supply) but take very little during the day. I had a great freezer stash but never touched it—most days I was freezing ten or twelve ounces more than he was drinking. After a few weeks of hoarding, I was running out of freezer space.

That was when I heard about Mothers’ Milk Bank at Austin. I could see my own baby growing and thriving on mama's milk, and it seemed like a profound blessing to be able to share that joy with other families too. Pumping milk at school stopped feeling like an anxiety-inducing chore and started feeling like a form of service.

Instead of letting my supply trail off, I took pleasure in keeping it as high as possible (more hand-expressing!) because I knew I was helping other babies with it. This turned out to be a good thing for my own baby as well, who's still happily nursing at fifteen months. (Here he is, sending his love to all his milk-brothers and milk-sisters!)

The donation period for MMBA ends at twelve months, but I'm already looking forward to becoming a donor mom again if we are blessed with another baby—sharing milk is a great way to keep up your own milk supply and your pumping morale as well as helping others!

Wednesday, June 29, 2016

2016 HMBANA Conference:Learning About the Science of Milk Banking

By Julia Weatherby
Mothers’ Milk Bank at Austin Board of Directors

Did you know there is so much research and science specific to milk banking that there is an entire conference devoted to it? Every two years, the Human Milk Banking Association of North America (HMBANA) hosts an international conference on donor human milk and milk banking. This year, the two-day conference was held in Orlando, Florida. Five people from the Mothers’ Milk Bank at Austin attended, including myself. I was attending for the first time. Other attendees and speakers included people from other milk banks, researchers, neonatologists, and other experts in nutrition, lactation and health.

While the conference was only two days long, it was packed full of educational and inspiring presentations. The conference had scientific presentations, as well as talks about social and public policy issues. We heard about the status of milk banking and breastfeeding across the globe.

I learned quite amazing things about breast milk and breastfeeding. The underlying process of breastfeeding is more complex than I had realized and the various components of breastmilk impact babies in so many ways. I learned that what I assumed was a simple and precise task of analyzing the content of milk is in reality actually challenging and expensive. In addition to that, a mother’s breastmilk varies in its content from the beginning of a feed to the end, as well as during different times of day, and from week to week. Between mothers, there are great variations as well. This makes for fascinating, but also difficult research.

One of the most interesting presentations was about microbiomes of the mother and baby.  Microbes live inside and on our body within microbiomes (skin, mouth, and gut), and affect all of us in terms of our overall health, immune health, weight and mental health. Microbes living in the mother’s microbiomes get transferred to the baby through birth, skin-to-skin contact and breastmilk. Just as there are variations in breastmilk content, we have variations in our microbiomes. By feeding a baby human breastmilk, we can ensure the infant receives beneficial microbes that are necessary for being a healthy human.

The highlight of the conference experience was being able to feel the passion and ambition of so many professionals who devote their time and effort to improving the health of infants worldwide. Through my work with the Mothers’ Milk Bank at Austin, I have met many people locally who are just as passionate in saving lives. It’s incredible to meet even more people who believe in the same mission, and see them work together and support each other in accomplishing big things for the smallest people.

Erin Hamilton Spence, Medical Director of Mothers' Milk Bank of North Texas

Pauline Sakamoto, HMBANA President

Kimberly Seals Allers, award-winning journalist and nationally recognized media commentator, consultant and advocate for breastfeeding and infant health

Thursday, April 28, 2016

Intern Spotlight: Learning About Milk Donor Characteristics

Sarah Marsh, University of Texas intern

I came to the Mother’s Milk Bank at Austin as a student intern and the mother of a then 10-month-old boy. Although I had known about the existence and importance of human milk banks in my professional life (I’m a nurse and a midwife), it wasn’t until I started breastfeeding my own baby (and experienced the triumphs, and the challenges) that I became more curious about milk donation and learning more about how human milk banks work. Although milk donation wasn’t an option for me, I met many new mothers in my community who became donors, and was inspired to learn more.

The focus of my work at MMBA has been on learning more about the personal characteristics and factors that motivate milk donors. I knew very little about MMBA and its wide network of donors and supporters before I started my internship and have learned so much. In 2014 and 2015, 1723 milk donors from all over the country (29 states and DC) donated their milk to MMBA to help support preterm and medically fragile infants. The median total milk volume donated by donors during this period was more than 500 ounces! As a pumping mom this amazes me!

It was also interesting to learn about how milk donors hear about MMBA. Milk donation is not yet as widely known as blood donation (MMBA is working on changing this!), so understanding how lactating women learn about milk donation is really important to sustaining and growing human milk banks and ensuring that vulnerable infants has access to donor human milk. I found that donors learn about human milk banking in many ways including healthcare providers, friends and word of mouth, lactation consultants, social media. There are champions of human milk bank working in hospitals, breastfeeding centers, and communities all over the country who are educating lactating women about the option of milk donation. In Austin, many donors say they learned about MMBA from driving past the building sign and local billboards.

My time at MMBA has demonstrated that a small group of committed staff, amazing volunteers and generous donors can change lives. The team at MMBA works tirelessly to support the normalcy of breastfeeding in our community and make milk donation as easy for the donors as possible, while processing the milk safely and in accordance with national standards. Together this group of amazing individuals (donors, MMBA staff, volunteers, and supporters) is helping preterm and medically fragile infants thrive!

-Sarah Marsh

Tuesday, August 18, 2015

Pumping for Preemies: Mrs. United States' Story

Katie Garza, an MMBA milk donor, ambassador, and Mrs. United States 2015, shares her very moving story and explains why she is dedicating her year to promoting milk banking and fundraising for the Mothers' Milk Bank at Austin's Charitable Care Program.

As Mothers, our natural instinct is to nurture and protect all babies, not just our own. Every donor Mom has an incredible story behind what motivates her to donate, because let me tell you, pumping around the clock is no walk in the park. This is my story:

At 30 weeks pregnant with my first child, I awoke in screaming pain. I was told that it was labor, and thankfully the doctors were able to stop the contractions. After three weeks of bed rest and constant labor, Phoenix Madilyn would wait no more.  Delivery was the scariest moment of my life. We had no idea what to expect or whether our girl would make it. She was born crying, and for a moment I cried tears of joy. Within minutes the crying stopped, and the doctors spoke in hushed voices while my tears of joy turned to heartbreak. She wasn't breathing on her own.

Within her first hours of life my teeny baby went from the comfort and security of the womb to being intubated and life flighted to Texas Children's level 3 NICU.  I couldn't touch her. I couldn't hold her. And like most NICU Moms, I couldn't provide her with the milk she needed despite every effort.

During the hours spent in the NICU, we got to know the nurses and fell in love with her baby buddies. We were filled with joy at the successes, and heartbreak when things went wrong. Phoenix was 4lbs 4oz - huge compared to the rest of the babies in her pod. Some babies had Mommy with them around the clock, while other babies were alone. Having an infant in the NICU can cause post-traumatic stress and there are many things to be said on this topic, but I will save that for another story.

Breast milk is the single most powerful medicine a medically fragile infant can receive. Not only is it superior nutrition, it also has healing power. Necrotizing enterocolitis (NEC) is the leading cause of death in preterm infants, and can be preventable with breast milk. If the Mother’s milk is not available, human donor breast milk is the next best thing. I wish I had known of this option. Maybe if Phoenix and the other babies received donor milk they would have been more comfortable, grew stronger, and came home sooner.

During our time in the NICU, I desperately needed to help my baby and the babies around her. There was nothing that I could do at that time, but now there is. Phoenix is now a healthy six year old with a brand new baby sister, Aubrey.  I started pumping as soon as Aubrey was born with a goal to strengthen my supply and donate to NICU babies. These babies can only receive breast milk from a milk bank, so I chose to donate to my local non-profit HMBANA milk bank, the Mothers’ Milk Bank at Austin.

More importantly, I want to make sure that the families whose babies have a medical need to receive my donor milk never have to pay for it if they cannot afford it. So I fundraise to ensure that every baby receives breast milk at no cost to them, regardless of their insurance coverage through Charitable Care.

I also want to make sure that Moms KNOW about donor breast milk, because so many simply aren't aware (like myself).  We are now working on an outreach and education program to touch every NICU Mom nationwide.

The taller my soap box, the farther our voices can be heard! As Mrs. United States my soap box is huge, and is opening doors to help get the message out for our preemies. The goal is to get more milk to more babies, and I am out there pounding the pavement, crown in hand (with pump breaks every 3 hours:). 

Wednesday, April 29, 2015

Spotlight on our Junior League of Austin Volunteers

We celebrated National Volunteer Week earlier this month, honoring the many volunteers who truly make a world of a difference in the health and lives of preterm and ill infants. One group of volunteers we recognized is our amazing Junior League of Austin (JLA) team. Over the past 15 years, the Milk Bank has been fortunate to be a Community Project of JLA and has benefited tremendously from the dedicated women who select us as their nonprofit of choice to fulfill their volunteer hours. Next month we will say goodbye to our incredible 2014-­2015 team, and we’ve just learned that we will welcome a new team for 2015-2016 – thank you Junior Leaguers! In addition to providing the woman power necessary to help us meet our mission, this amazing organization has supported our Charitable Care Program (CCP) since 1999. The CCP is a philanthropically supported program that allows the Milk Bank to provide donor milk to every baby with a medical need – regardless of insurance coverage or families’ financial resources. The Junior League of Austin has literally helped us to same thousands of lives over the years!

In honor of National Volunteer Week and this year’s JLA participants, we want to spotlight the experiences of a couple of our volunteers as they reflect on their time spent with the Milk Bank.

Meet Bethany! I joined the Junior League of Austin in the summer of 2013, right around the same time my daughter, Zoryana ("Zory") was born. I was eager to stay involved in the community, and have the opportunity to connect with other working moms also looking to stay active with their community involvement. As a new mom, I had hoped to become a milk donor for the Mothers’ Milk Bank of Austin - I had periodically heard about the organization and the incredible ways in which they are able to help fragile babies with the milk donated by breastfeeding moms. Unfortunately, I barely produced enough breast milk for my little one, let alone enough to donate to the Milk Bank. Fast forward a year when it was time to choose my community placement with the League. I sorted through a massive list of organizations supported by the Junior League, and to my surprise, found the Mothers’ Milk Bank listed with the opportunity to help process milk in the lab. I knew it was the perfect opportunity for me to give back to the Milk Bank in a different way than I had originally hoped. 

This past year, I've been able to pick up milk from drop off locations around town and bring it to the Milk Bank; I've logged frozen mother's breast milk that's been shipped to the Milk Bank from around the country to prepare it for milk processing; I've worked on the front lines with the pour team, mixing and pouring milk for pasteurization. While I wasn't able to donate my breast milk, I was able to contribute my time to help improve the health and lives of preterm and ill infants. I feel very lucky to have had this opportunity this past year and to work closely with the incredible staff who bring their passion for helping fragile babies to work every day. 

Meet Doran! At the Mother's Milk Bank of Austin, every day feels like volunteer appreciation day.  From my first week, the staff made me feel so welcome.  As a volunteer, I was able to immediately start helping with events that promote the milk bank, breastfeeding and the importance of donating breast milk.  Hearing stories of mothers whose premature babies were the recipients of donated breast milk catapulted my interest in how the breast milk is processed.  I loved taking an active part in the thawing and pouring of the breast milk into flasks to later be pasteurized.  I also took on a more behind the scenes role by participating in statistical analysis of the nutritional content of the milk.  I was amazed to learn that the executive director of the Milk Bank looks at every mother’s milk donation’s nutritional content to make sure that each NICU baby receives just the right amount of fat and calories in their milk. 

Just like every ounce of milk donated counts to make a difference in the lives of babies born too soon, every minute of volunteering makes a difference at the Mothers’ Milk Bank of Austin.  I hope the readers decide to one day donate their extra milk, donate financially or donate their time to this wonderful organization.